5FU Freedom Project
Some patients and caregivers have learned how to self-disconnect their 5FU pumps at home — and many more want to. Read on to learn more about meeting this patient need!
“Having the patients empowered to safely self-disconnect themselves decreases the need for home care and the decreases the patient load from the infusion center. Empowering patients to self-disconnect from their chemotherapy infusions represents a significant innovation in patient care. This approach enhances patient competence by giving them the skills and confidence to manage their treatment, fostering a greater sense of control over their health.” — from ‘5FU Self-Disconnects’ poster presented at NHIA 2025 by Tantalo, et al from University of Rochester Wilmot Cancer Centre.
List of cancer centers where COLONTOWN
members have reported self-disconnecting
To see this map as a list, click here. To add a center to this map, email [email protected]
Our Poster and Presentation
Click on the image to enlarge and click the arrows to see our whole presentation
Steps your cancer center can take to support self-disconnect freedom
1
Identify who will perform the pump disconnect
In our survey, 40% patients themselves, 60% by caregiver.
Provide training on how to disconnect the pump
For respondents who self-disconnected in our survey, most were taught via live demo, followed by video and written instructions. 93% of those who didn’t self-disconnect said a video would be helpful to decide whether to self-disconnect. Consider doing a live demo with video + written material reference. See below for some resources.
2
3
Provide a disconnect kit to the patient upon discharge
See this video from Dana Farber on what they provide in their kit.
Provide a system for disposing the old pump
In our survey, most people returned their pumps to their cancer centers.











