COLONTOWN has more than 120 “secret” groups on Facebook for colorectal cancer patients and survivors. We call these groups neighborhoods, and each one has a focus that connects all its members, from stage of disease to treatment type to common interests such as diet or women’s issues. Once you join COLONTOWN, you can join any of its neighborhoods that fit your needs and interests. Because all the neighborhoods are secret, no one outside the neighborhood can see anything about it, including who belongs. They are safe, private spaces for you to “find your people!”

This list of neighborhoods is current as of January, 2021. New neighborhoods are created whenever we have the interest among our neighbors in COLONTOWN!
If this sounds like a place you’d like to belong, please fill out the form at Join COLONTOWN and we’ll be in touch!

COLONTOWN DOWNTOWN

Everyone in COLONTOWN belongs to its central neighborhood

Ages and Stages

Neighborhoods for patients with different stages of disease, and for young patients
  • 1st Avenue (stage i patients)
  • 2nd Avenue (stage ii patients)
  • 3rd Lane (stage iii patients)
  • Four Corners (stage iv patients)
  • Middlebury Manor (patients over 40)
  • NED’s Ballroom (for those with No Evidence of Disease)
  • River Valley (end stage patients)
  • Youngstown (patients diagnosed under 40)

Treatment Township

Neighborhoods for those on specific treatments or drugs

  • Corner Cupboard (remedies for side effects of treatment)
  • Flora Garden (fecal transplantation)
  • Hipec Heights (HIPEC for peritoneal mets)
  • Hospice Harbor (Hospice support)
  • LARS Junction (Lower Anterior Resection Syndrome)
  • Live Wire (suggestions and support for neuropathy from chemo)
  • Lonnie Den (LONSURF chemo)
  • Palliative Pathways (palliative care options)
  • Reconstruction Zone (reconstructive surgery in vaginal area)
  • Reversal Roundabout (ostomy reversal)
  • StivargaVille (STIVARGA chemo, including use of REGO/NIVO)
  • Stoma City (all ostomies)
  • The Late Show (patients with longterm treatment after effects)

Carepartner Cove

These neighborhoods are just for caregivers;  no patients allowed!
  • Beyond the Threshold (for those whose patients have passed)
  • Carepartner Corner (for primary carepartners)
  • Dad’s Grief Garage (father figures dealing with grief)
  • Family Circle (for family members)
  • Parent Loss Connection (adult children who have lost a parent to CRC)
  • Parents’ Porch (for parent carepartners)
  • Stage IV Carepartners (for stage iv only)
  • Teen COLONTOWN (teen family members)

The Circus

These neighborhoods are for anyone who shares an interest; some related to crc, and some just for fun!
  • Billing Office (insurance issues)
  • COLONTOWN Cemetary (patients and caregivers)
  • Crafting 4 Healing (arts and crafts and fun)
  • Healthy Gut Cafe and Fitness Center (dietary and fitness support)
  • Merlin’s Majic & Laffs (be silly here)
  • Planning Plaza (end of life planning, wills, finances)
  • Poker Club (for male patients only)
  • Prideville (LGBTQ)
  • PTA (patients with young children)
  • Singletons (singles only)
  • Skeptics’ Overpass
  • Tough Chicks (women only)
  • Twelve Steps of COLONTOWN (12 step programs)

Crews – USA

Meet folks local to you in places around the country; our crews often plan in-person meet ups at conference and just for fun!
  • Atlanta
  • Badgerburgh (WI)
  • Bay Area Crew (SF)
  • Bayou/Gulf Crew (LA and Gulf Coast)
  • Beantown (Boston area)
  • Big Apple (NY)
  • Bluebonnets (TX)
  • Bluegrass Boulevard (KY)
  • Capital City (MD, DC, VA)
  • Carolinas (NC, SC)
  • Constitution Avenue (CT)
  • Cornhusker Crew (NE)
  • Field of Dreams (IA)
  • Glitter Gulch (NV)
  • Grand Canyon (AZ)
  • Hampton Roads (Southern VA)
  • Hollywoodland (So Cal)
  • Indy Crew (Indianapolis)
  • Jersey Strong (NJ)
  • Mayo (Mayo Clinic/Rochester)
  • Middle of the Map (KC)
  • Mile High (Denver)
  • Motor City Crew (Detroit)
  • Northern Lights (Northern Minnesota)
  • PENN Pals (Pennsylvania)
  • Rock n Roll (Cleveland)
  • SnowCountry Crew (UT)
  • Sunshine State (FL)
  • Thunder Alley (OK)
  • Trailblazers (Pacific NW/Portland)
  • Treasured State (MT)
  • Twin Cities (MN)
  • Windy City (Chicago)

Crews – International

Local groups for our COLONTOWNies around the world and speaking other languages than English
  • Colonville (Francophones)
  • Darmstadt Crew (German speakers)
  • Downton Alley (UK)
  • Straya (Australia)
  • True North Crew (Canada)
  • Villa Colon (Spanish language)

Maladies, Propensities and Locations

Neighborhoods for those dealing with specific types of colorectal cancer and related diseases
  • Cognitive Way (Chemo brain)
  • Honor Thy Appendix (cancer originating in appendix/patients only)
  • Jelly Belly Place (mucinous cancer)
  • On the Right Side (cancer originated in cecum/patients only)
  • Poop Chute (colon cancer/patients only)
  • Rectalburgh (rectal cancer/patients only)
  • Small Bowel Corral (small intestine cancer)

Mets Stadium 

  • The Attic (brain mets)
  • HAI Pump People (HAI for liver mets)
  • Legosland (bone mets)
  • Liver Lovers Lane (options for liver mets treatment)
  • Lungston (lung mets)
  • Mighty Y-90 (y-90 for liver mets
  • Transplantation Station (live donor liver transplants for crc)

Outside the Realm

Neighborhoods for patients and families with non-crc GI conditions. Members in these neighborhoods do not need to belong to DOWNTOWN.

  • Analwise (anal cancer patients)
  • FAP Family (Familial Adenomatous Polyposis patients and family)
  • IBD Alleyway (Inflammatory Bowel Disease, including colitis and Crohn’s)
  • Lynchville (lynch syndrome, for cancer survivors and pre-vivors)

Spiritual Center

Although COLONTOWN itself is a secular place, we have neighborhoods for those who want to share their faith with fellow believers

  • COLONTOWN Kibbutz (Jewish)
  • Crescent & Star Centre (Muslim)
  • Spiritual Center 4 All Faiths (primarily Christian)

Tom’s Clinic

Named after Tom Marsilje, COLONTOWN’s beloved clinical trials mentor, these neighborhoods are for patients and caregivers interested in learning about, or participating in, clinical trials; find the latest advances in treatment here!
  • CRC 101 (scientific fundamentals of colorectal disease)
  • Tom’s Anal Cancer Trials
  • Tom’s BRAF+ Treatment Clinic (BRAF, MSS)
  • Tom’s Car-T Club
  • Tom’s CheckPoint Club (Chek2 mutations)
  • Tom’s HER2 Clinic
  • Tom’s MSI-H Clinic (MSI trials)
  • Tom’s MSS Clinical Trials 4 CRC (MSS, KRAS mutations trials)
  • Tom’s NIH Lounge (T-il and other NIH trials)
  • Tom’s RAS Clinic (KRAS, NRAS, HRAS)

Uncle Joe’s River Guides

Neighborhoods for health care providers

  • COLONTOWN Consulting Physicians (by invitation only)
  • Doctors’ Lounge (physician patients only)
  • Nurses’ Station