COLONTOWN has more than 100 “secret” groups on Facebook for colorectal cancer patients and survivors. We call these groups neighborhoods, and each one has a focus that connects all its members, from stage of disease to treatment type to common interests such as diet or women’s issues. Once you join COLONTOWN, you can join any of its neighborhoods that fit your needs and interests. Because all the neighborhoods are secret, no one outside the neighborhood can see anything about it, including who belongs. They are safe, private spaces for you to “find your people!”
This list of neighborhoods is current as of January, 2019. New neighborhoods are created whenever we have the interest among our neighbors in COLONTOWN!
If this sounds like a place you’d like to belong, please fill out the form at Join COLONTOWN and we’ll be in touch!
COLONTOWN DOWNTOWN
Everyone in COLONTOWN belongs to its central neighborhood
Ages and Stages
Neighborhoods for patients with different stages of disease, and for young patients
- 1st Street (stage i patients)
- 2nd Avenue (stage ii patients)
- 3rd Lane (stage iii patients)
- Four Corners (stage iv patients)
- River Valley (end stage patients)
- Youngstown (patients diagnosed under 40)
Blue Light Specials
Neighborhoods for those on specific treatments or drugs
- Flora Garden (fecal transplantation)
- HAI Pump People (HAI for liver mets)
- Hipec Heights (HIPEC for peritoneal mets)
- Live Wire (neuropathy from chemo)
- Lonnie Den (LONSURF chemo)
- Mighty Y-90 (y-90 for liver mets)
- Reconstruction Zone (reconstructive surgery in vaginal area)
- Reversal Roundabout (ostomy reversal)
- StivargaVille (STIVARGA chemo)
- Stoma City (all ostomies)
- The Late Show (patients with longterm treatment after effects)
Carepartner Cove
These neighborhoods are just for caregivers; no patients allowed!
- Beyond the Threshold (for those whose patients have passed)
- Carepartner Corner (for primary carepartners)
- Family Circle (for family members)
- Stage IV Carepartners (for stage iv only)
- Teen COLONTOWN (teen family members)
International Crews
Local groups for our COLONTOWNies around the world and speaking other languages than English
- Straya (Australia)
- The Darmstadt Crew (Germany)
- True North Crew (Canada)
- Villa Colon (Spanish language: USA-based)
Maladies, Propensities and Locations
Neighborhoods for those dealing with specific types of colorectal cancer and related diseases
- Analwise (anal cancer/patients only)
- The Attic (brain mets)
- Cecumburgh (cancer originating in cecum/patients only)
- ChekPoint (Chek2 mutations)
- FAP Family (FAP/patients and family)
- Honor Thy Appendix (cancer originating in appendix/patients only)
- IBD Alleyway (IBD, colitis, crohn’s/patients only)
- Jelly Belly Place (mucinous cancer)
- Legosland (bone mets)
- Liver Lovers Lane (options for liver mets treatment)
- Lungston (lung mets)
- Lynchville (Lynch syndrome/survivors and pre-vivors)
- Poop Chute (colon cancer/patients only)
- Rectalburgh (rectal cancer/patients only)
- Transplantation Station (live donor liver transplants for crc)
Spiritual Spots
Although COLONTOWN itself is a secular place, we have neighborhoods for those who want to share their faith with fellow believers
- COLONTOWN Kibbutz (Jewish)
- Crescent & Star Centre (Muslim)
- Spiritual Center 4 All Faiths (primarily Christian)
The Circus
These neighborhoods are for anyone who shares an interest; some related to crc, and some just for fun!
- Billing Office (insurance issues)
- Crafting 4 Healing (arts and crafts and fun)
- Healthy Gut Cafe and Fitness Center (dietary and fitness support)
- Merlin’s Majic & Laffs (be silly here)
- Palliative Pathways (palliative care)
- Planning Plaza (end of life planning, wills, finances)
- Poker Group (for men only)
- PTA (patients with young children)
- Singletons (singles only)
- Skeptics Overpass (nonbelievers)
- Tough Chicks (women only)
The News Bureau
This is COLONTOWN’s PUBLIC face, where we post resources of interest to all crc patients and caregivers, and blogs from our neighbors
- New Times
- Bloggers Haven
- Public Library
Tom’s Clinic
Named after Tom Marsilje, COLONTOWN’s beloved clinical trials mentor, these neighborhoods are for patients and caregivers interested in learning about, or participating in, clinical trials; find the latest advances in treatment here!
- CRC 101 (scientific fundamentals of colorectal disease)
- Tom’s Anal Cancer Trials
- Tom’s BRAF+ Treatment Clinic (BRAF, MSS)
- Tom’s Car-T Trials
- Tom’s Chek2 Club (Chek2 mutations)
- Tom’s HER2 Trials
- Tom’s MSI-H Clinic (MSI trials)
- Tom’s MSS Clinical Trials 4 CRC (MSS, KRAS mutations trials)
- Tom’s NIH Lounge (T-il and other NIH trials)
USA Crews
Meet folks local to you in places around the country; our crews often plan in-person meet ups at conference and just for fun!
- Atlanta
- Badgerburgh (WI)
- Bay Area Crew (SF)
- Bayou/Gulf Crew (LA and Gulf Coast)
- Beantown (Boston area)
- Big Apple (NY)
- Bluebonnets (TX)
- Capital City (MD, DC, VA)
- Carolina (NC, SC)
- Cornhusker Crew (NE)
- Field of Dreams (IA)
- Glitter Gulch (NV)
- Grand Canyon (AZ)
- Hollywoodland (So Cal)
- Indy Crew (Indianapolis)
- Jersey Strong (NJ)
- Liberty Bell (PA)
- Mayo (Mayo Clinic/Rochester)
- Middle of the Map (KC)
- Mile HIgh (Denver)
- Motor City Crew (Detroit)
- Rock n Roll (Cleveland)
- Snow Country Crew (UT)
- Sunshine State (FL)
- Thunder Alley (OK)
- Trailblazers (Pacific NW/Portland)
- Treasured State (MT)
- Twin Cities (MN)
- Windy City (Chicago)