February 3, 2024

CHRONICLE

Volume 2.
Colontown, USA

Free

MEET PALLIATIVE PALADIN MICHELE

Michele advocates on behalf of all patients and caregivers for earlier palliative care intervention

I found out about COLONTOWN from a small internet caregiver support group that was my go to when my Dad was diagnosed with Stage IIIC colon cancer in 2009. In 2014, my friends in that group told me about COLONTOWN and I joined and immediately found “my people”. People who understood and who really “got it”. People who were deep in the trenches of treatment and caregiving and who offered me hope. I was excited to give back when I was asked to help admin the caregiver neighborhoods.

   COLONTOWN gave me the courage, the science and the support to be a better caregiver for my Dad. I would go to his appointments armed with notes and questions that I learned from COLONTOWN and I would have doctors say, “Are you sure you are not in the medical field?” I brought trial information to them that they had not read about yet. I will be forever grateful for the research and support from Townies that gave me the tools that I needed to be the best possible advocate that I could be for him.

   I am extremely passionate about palliative care because I believe that our patients should be assigned a palliative team upon diagnosis. I was so afraid to ask to ask the oncologist about adding palliative care because of the “hospice stigma”. Once I realized that palliative care was really SUPPORTIVE care and not hospice care, a whole new world of support opened for not only my Dad, but for my Mom and I as caregivers. Our palliative NP saved us so many calls to the oncologist and many trips to the ER. She treated my Dad as a whole person and not just a cancer patient. She came to the house and offered practical tips for side effects and I believe my Dad had increased quality of life with the addition of palliative care. I hope our patients and caregivers reading this post will reach out to me to be added to our palliative neighborhood or it will inspire them to ask about palliative care at their next oncology visit.

   I was so lucky to have my Dad until 2018 and I have stayed on to help host the PARENT LOSS CONNECTION, ROCK’N ROLL CREW (Ohio), PALLIATIVE PATHWAYS, HOSPICE HARBOR and LONG HAULER HOLLOW neighborhoods in the hopes that my CRC caregiving experience will help other patients and caregivers and to continue to make my Dad proud.

I found out about COLONTOWN from a small internet caregiver support group that was my go to when my Dad was diagnosed with Stage IIIC colon cancer in 2009. In 2014, my friends in that group told me about COLONTOWN and I joined and immediately found “my people”. People who understood and who really “got it”. People who were deep in the trenches of treatment and caregiving and who offered me hope. I was excited to give back when I was asked to help admin the caregiver neighborhoods.

  COLONTOWN gave me the courage, the science and the support to be a better caregiver for my Dad. I would go to his appointments armed with notes and questions that I learned from COLONTOWN and I would have doctors say, “Are you sure you are not in the medical field?” I brought trial information to them that they had not read about yet. I will be forever grateful for the research and support from Townies that gave me the tools that I needed to be the best possible advocate that I could be for him.

   I am extremely passionate about palliative care because I believe that our patients should be assigned a palliative team upon diagnosis. I was so afraid to ask to ask the oncologist about adding palliative care because of the “hospice stigma”. Once I realized that palliative care was really SUPPORTIVE care and not hospice care, a whole new world of support opened for not only my Dad, but for my Mom and I as caregivers. Our palliative NP saved us so many calls to the oncologist and many trips to the ER. She treated my Dad as a whole person and not just a cancer patient. She came to the house and offered practical tips for side effects and I believe my Dad had increased quality of life with the addition of palliative care. I hope our patients and caregivers reading this post will reach out to me to be added to our palliative neighborhood or it will inspire them to ask about palliative care at their next oncology visit.

   I was so lucky to have my Dad until 2018 and I have stayed on to help host the PARENT LOSS CONNECTION, ROCK’N ROLL CREW (Ohio), PALLIATIVE PATHWAYS, HOSPICE HARBOR and LONG HAULER HOLLOW neighborhoods in the hopes that my CRC caregiving experience will help other patients and caregivers and to continue to make my Dad proud.

MEET MORE COLONTOWN HEROES

These hometown heroes keep COLONTOWN safe, educated and connected to other patients and carepartners

Extra! Extra! Read all about it! Did you know that COLONTOWN is filled with local heroes? As we move into the new year, we want to highlight all the amazing ways our patients and carepartners give back. From the Knight of Knowledge to the Sensational Survivor, our superheroes help thousands of their neighbors find their people, research new treatment options, and advocate for their own care. Check here every month to see a new COLONTOWN Hero unmasked! Do you know a superhero in your neighborhood?

COLONTOWN Chronicle